Tuesday, January 12, 2016

Some Are More Than Amazing!

I have been working on my official fist post of the year. New resolutions... new goals... bucket list items I want to conquer this year. Milestones I want to set in order to really feel like I have achieved something by the end of 2016. Because quality and success is measured on achievements. Right???

Maybe not... Maybe that's not quite fair.
Goals are helpful. Goals push us to be better versions of our selves.
Setting examples not only help us to be better versions of our selves but they also inspire others.
And I am inspired!

Today, I am inspired by a young girl named Kaila. Not because she runs marathons or because she is successful in business. I am inspired by this young girls story and the thoughtfulness that she has shown my Brown Eyed Girl!

Kaila, like my Brown Eyed Girl, has Chronic Recurrent Multifocal Osteomyelitis (CRMO). Kaila is 14 years old and has been diagnosed with CRMO for the last 7 years. Last year, Kaila created Kaila's Komfort. What started out as a Girl Scout Silver Award Project turned into a passion for touching the lives of others who have been affected by the same rare and painful auto inflammatory bone disease she has. Kaila’s project idea was to create care packages for children and adults around the world that were recently diagnosed with CRMO.  After the Award Project was completed, she decided that she wanted to continue with her newfound passion.



Kaila creates each care package especially for that child based on their likes/interests, types of treatments they are receiving and so on. 

Today, my Brown Eyed Girl received her Kaila's Komfort package in the mail!


Inside, Kaila put together several items within a purple, mesh cinch sac. 


She included a CRMO Awareness t-shirt for my beautiful girl to wear! The awareness ribbon for CRMO is purple - a perfect fit!



A handmade hot or cold rice therapy sack made from an awesome horse sock! Right up my horse crazy girl's alley!


A purple CRMO Awareness bracelet.  


New Legos!


Frozen jelly beans and an Elsa coloring board.


Kaila sent a personalized note as well and mentioned she shared a love for horses and cats too!


Kaila also includes a letter with a lot of information about CRMO, and resources for finding family support on facebook and the internet. I actually have learned so much after joining one of the family support groups on facebook that she lists. 


It's not a cure but it sure brought a HUGE smile to our home today. 

If you are looking for a charity or a great cause to support this year, I would invite you to swing by Kaila's Komfort and support this young girls vision of bringing a smile and joy to other kids that have the same bone disease as she does... as my Brown Eyed Girl does.

 

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